A SCHOOLBOY who became the youngest person in Britain to be diagnosed with motor neurone disease has died aged just 14.
Brave Kyle Sieniawski was just like other schoolboys who enjoyed playing with his friends until the shock diagnosis just ten months ago.
The MND usually affects adults over 50 – but sufferers include the late rugby league player Rob Burrow who died at 41 and also struck former England rugby union captain Lewis Moody at 47.
Sport-loving Kyle was taking part in Taekwondo but noticed his left arm would not move properly in March 2023.
After a series of scans and tests his parents Melanie and Mark were given the shocking diagnosis in January that he suffers from the degenerative condition MND.
Kyle’s family were told the youngster, from Pontypridd, South Wales, was the youngest person in the UK to receive a diagnosis.
His family announced their “little superhero” tragically died just ten months after his diagnosis surrounded by “those who adored him.”
The family said: “We’ll miss you so very much buddy and we love you more than words can ever say.
“We can already picture you up there challenging your two nans and grandad to a game of Connect 4 and making them smile, just as you made us smile a million times before.
“We’ll think of you every single day, beautiful boy.”
Kyle’s family said he “fought with all his strength but the illness ultimately became too much.”
Parents Mark and Melanie added: “There’s no way for us to describe how we’re feeling…. we’re just completely heartbroken
Kyle had been at Noah’s Ark Children’s Hospital in Cardiff where he spent time playing Connect 4 with his brother Liam, 18.
Mum Melanie said in August: “You feel awful really, hopeless, because they tell you that there’s nothing they can do to treat it, or there’s no possible cure.
“We are obviously very desperate. We are living in the hospital. All our lives are on hold,” she added.
“It’s quite scary because when we came in, he was walking, and now he can’t do anything.”
A fundraising appeal raised more than £10,000.
A family spokeswoman said: “The support has been outstanding. The comments in particular are really helping the family as Melanie and Mark are reading them and it’s comforting them.
“Kyle’s parents – Melanie and Mark – want to thank everyone for their kindness and generosity, as well as the staff at Noah’s Ark, where Kyle has been staying.”
